Rachel Valenta

Rachel Valenta is the Clinical Outreach Co-Chair for the Patient Advisors and the Patient Advisory Representative for the CAN Board. She is passionate about research, data, and the challenge of turning complex information into meaningful, actionable insights. That curiosity has shaped both her professional work and the projects she gravitates toward.

She lives by the sea in Israel and brings both professional experience and lived perspective to her work. After being diagnosed with cEDS, a doctor told her something she has carried ever since: today should be the worst day of your health journey. With knowledge comes the ability to make changes that improve outcomes, and that belief continues to shape her approach to advocacy.