President
Hayley Kirby
cEDS USA
hayley@collagenadvocacynetwork.org Hayley came to this work from two directions at once: as a classical EDS COL5A1 patient, which took until 2020 to receive a genetic diagnosis, and as the parent of a child who shares it.
When she couldn't find fitness professionals who understood how to work safely with a cEDS body, she became one. She's now a NASM-certified personal trainer, group fitness and fitness nutrition specialist, and yoga teacher who has run her own fitness business for over 15 years, specializing in clients with hypermobility, chronic injury, and those navigating fitness through the aging process — with a yoga practice informing everything she does.
Outside of work, she's a mom, a runner, and the devoted servant of a very large Newfoundland.